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The parents of one of my pediatric patients are unhappy with answering online questionnaires about their child. They asked who had access to their child’s information, if the results were used in any sort of research, and if the results are reported anywhere. Can you share information addressing patient privacy? 

The full Privacy Policy for ASQ Online can be viewed here. A parent completing questionnaires through ASQ Family Access is referred to as a Family Access Authorized User in this policy. 

The ASQ developers are early interventionists, researchers, and educators engaged in ongoing work to improve ASQ to better enable them to advance developmental screening and better serve young children and their families. Brookes Publishing and the developers may use child and caregiver data that have been stripped of all personally identifying information about individual children, individual caregivers, organizations, and programs (commonly called de-identified data) for research purposes. From time to time, Brookes Publishing and/or the developers, individually or collectively, may publish the results of their research on the de-identified data. In no event will any such results identify in any way an individual child, individual caregiver, site, program, or organization, and there is no threat to your privacy from the distribution of such de-identified information. Neither Brookes Publishing Co. nor the developers will rent or sell the de-identified data under any circumstances. 

  • 404
  • 06-Nov-2019
  • 237 Views
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